Here's a humorous start to a serious
post. The conversation was between Ms T and one of her numerous
specialists.
Specialist: “And what does Mr X (her
vascular surgeon) say?”
Ms T: “He says it's perfect. And I
still want to punch him.”
Specialist: “Oh, that's all right.
He's a surgeon. Everyone wants to punch them.”
I
strongly suspect that the head of Western Australia's AMA, Dr Richard
Choong, must be a surgeon, because after his contribution to the
euthanasia debate, I want to punch him. Honestly, here are two quotes
straight out of the
SBS news story.
“Transition from life to death” –
yes, he really said that. No, it's called “dying” and we all have
to do it. But some of us get to do it slowly, painfully, in
depressing ways, replacing dignity with relatives to clean up the
shit in elbow-length gloves. Others might just go quickly from a
gunshot or something. Transition is what you make of it, I guess,
whether it's miserable for years or a momentary “shit, what was
that?”
“Quality of life is how the
individual approaches their life, and what contribution they make
from their life and what they receive from it” – yes, he really
said that as well. And this is the true ignorance, the inexperience
of youth that I want to unpick.
Now, I've said on this blog before that
my wife is dying. We don't know when, and at the moment, things are
not too bad.
But this post is about pain and
stupid, stupid, smug people who haven't had it bad. So, with my
wife's permission, I'll outline a little detail.
Painkillers
Ms T can't take Paracetamol, because
her immune system's damaged her liver. She can't take aspirin,
because of damage to her stomach. And she can't take
anti-inflammatory painkillers, because they set off the immune system
condition (heaven knows why). This leaves her one, just one,
effective painkiller shy of the hospice: artificial opioids. How much
does she know about chronic, disabling pain?
Chemotherapy
Try it, Dr Hoong. Try getting the
carer's kit: the long gloves in case someone vomits or shits
themselves, because you're not supposed to touch what comes out. Try
the weight loss, the skin lesions, the constant fear that the
suppressed immune system will give rise to a tumour that isn't
spotted before it becomes the next killer. Try the constant anaemia
that leaves you sapped of energy.
Steroids
Heaven knows why footballers and
runners think they're a good thing. They ruin your skin, make you
bruise like nothing, suppress the immune system (because we need just
a little more vulnerability), and generally fuck up your life.
Sex
Just don't start. If it happens, it's
likely to be traumatic. If it's not too bad, you light fireworks. If
it's actually like the life you remembered when you married, you're
in danger of running naked down the street yelling “Up yours,
world, we got a fuck and it didn't hurt!”
Work
Well, you can strike off the suits and
polished shirts and expensive ties and the other trappings of being a
prominent doctor. In fact, my honoured smugness, try striking off
work at all. Because you can't deal with the public if you're likely
to throw up. And your looks are ruined, your skin blotchy, your mind
is addled, and you can't think what would happen if your carer broke
a leg, let alone died.
And Ms T isn't dying this year, it
seems, nor next, and maybe, life willing, not for a decade.
But even our faint shadows of death
give us hints. To have less life than this, and more death; to have
less joy and more pain; to have certainty on one hand and no reward
in the other? Sure: I'd consider euthanasia.
Ms T and I, we'll get by for now. We
can still imagine that she will one day be well enough that we can
walk some of our favourite bushwalks together. We can still hear the
echoes of what we were when we met, loved, and somehow ended up
married.
But if the love of my life begged it of
me, and explained why? I would cry and beg and argue; I would, as I
do, wish life better and different. I would tear the temple down,
tear the world down, rather than consent. And if a kind death were
the last service love could offer, I would give it while my heart
broke.
My father's last words still haunt me.
“I know what I'm like, don't think I don't. I can't control this.
Don't come again.”
I disobeyed him, visited again when he
was already lost in confusion and shit.
It took another year for him to die.